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Model and 2018 Miss Surrey Destiny Sedlacek: Raising awareness of my rare genetic disorder and a perfect Surrey weekend

PUBLISHED: 12:13 20 August 2018 | UPDATED: 12:13 20 August 2018

Destiny (Photo by K. A. Sedlacek)

Destiny (Photo by K. A. Sedlacek)

K. A. Sedlacek

As the 2018 Miss Surrey, Weybridge model Destiny Sedlacek spends her weekends promoting the county and raising awareness of a rare genetic disorder she is battling

My weekend can change invariably due to certain factors in my life; I was recently crowned Miss Surrey 2018 and I also battle a chronic illness called Ehlers Danlos Syndrome.

I usually welcome the weekend after a long day at work on a Friday by washing the week off with a bubble bath accompanied by some ever so cliché Michael Bublé playing in the background. Next is the inevitable Netflix marathon – usually a crime documentary, Suits, Pretty Little Liars or Riverdale. I tend to constantly multi-task so I’ll also have a booked glued to me, at the moment I’m obsessed with law books, getting into the spirit for when I go to university in September.

Saturday morning usually commences with a routine walk. Due to my health, exercise is not really an option at the moment, but to keep things moving a walk is vital. My ultimate route is either to walk around the lake at Virginia Water or for a more adventurous walk I choose Horsell Common. It’s only recently that I have begun to appreciate all of the incredible locations one has in Surrey. If the rest of my Saturday isn’t filled with trips to the hospital, it’s spent either on a photoshoot or more recently, press events for the Miss England competition.

If there’s enough time in the afternoon, I’ll try to go for another walk with my dad or a catch-up coffee with one of my friends. My go-to café is Valentina in Weybridge. This café is run by Italians and is incredibly authentic, it makes you feel like you’re in Rome and I highly recommend their delectable panettone. Again, I usually try to have a relaxing evening but also try to catch up on emails, messages and of course social media. Since becoming involved with Miss England, I have used my title of Miss Surrey to raise awareness for Ehlers Danlos Syndrome. This is a connective tissue disorder which most commonly causes joint problems. However, for me, my internal organs such as my digestive and cardiac system have been the most compromised. Using social media, I have been able to connect and meet so many girls who are in the position I was in a couple of years ago. The reason I try to raise awareness for these conditions is because there seems to be an embarrassment around the fact that the girls affected appear to be well and fully functional but behind closed doors, they’re suffering terribly.

Sunday is probably my favourite day of the week, as I usually spend it horse riding. While still recovering from a major operation I find myself mainly hacking, as it is less physically demanding than showjumping or arena work. My favourite trail in Surrey is Newlands Corner – the views and open space are just perfect. I’ve been horse riding since the age of four and it is the one thing that I can rely on to cheer me up no matter how unwell I feel or how bad a day has been.

Sunday afternoon is family time and Sunday evening is spent preparing for work on Monday and any other tasks or events that I have planned for the week ahead. I also use my Sunday evening to brainstorm ideas of how to raise money and awareness for Beauty With A Purpose. This charity is responsible for funding humanitarian projects around the world such as the Cleft Palate Teams in South America, Sri Lanka and Russia, supporting neglected and abandoned children in Vietnam and many more. Beauty With a Purpose is a charity close to my heart as it not only aids a vast array of projects but the concept behind the name is highly relatable to me.

beautywithapurpose.com

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